CAREGIVING

Caregiving encompasses essential people and services that enable older adults to live at home.

Supporting Diverse Family Caregivers: A Guide for Patient Advocacy Groups

The National Alliance for Caregiving conducted structured interviews with professionals from patient advocacy groups and diverse family caregivers caring for someone who had been diagnosed with heart disease, blood cancer, lung cancer or lupus, conditions that are known to disproportionately affect diverse communities. We wanted to better understand how culture and identity affects the way caregivers provide care, access culturally responsive supports and resources, and how caregivers engage with patient advocacy groups. With the guidance of a panel of disease representative patient advocacy organizations, these findings shaped the content of this guide and supported the need for sections detailing the research findings, articulating what diverse caregivers say about their experiences, and offering tips for both advocating for and empowering diverse caregivers. What Providers Should Know: Factsheets About Diverse Family Caregivers, was contributed by the Diverse Elders Coalition and offers supporting evidence documenting the unique needs of diverse caregivers.
Read More

Cultural Norms and Caregiving

Cultural norms and values can impact the way Hispanic/Latino caregivers care for their loved ones. This series of worksheets and accompanying videos was created in collaboration with our partners at Trualta. They are designed for caregivers to identify how cultural values and norms affect their caregiving, help identify which values are important to them, and ways to implement those values in their daily lives as caregivers. Each worksheet has an accompanying video which features interviews with actual caregivers sharing their experiences to help reflect on how different values affect caregiving, and guidance on how these values can also help self-care for caregivers.
Read More

Tips for Hispanic/Latino Family Caregivers of Older Adults: Planning for Public Health Emergencies and Common Disasters

A Public Health Emergency is when a community is impacted by the threat of an illness or health condition that poses a substantial risk to human health, such as COVID-19, or natural disasters also known as common disasters. Examples of common disasters include wildfires, windstorms, floods, earthquakes, tornados, extreme temperatures, and hurricanes.
Read More