Caregiving

Supporting Diverse Family Caregivers: A Guide for Patient Advocacy Groups

  • Date: March 4, 2023
  • By: user
  • Categories: CAREGIVING
The National Alliance for Caregiving conducted structured interviews with professionals from patient advocacy groups and diverse family caregivers caring for someone who had been diagnosed with heart disease, blood cancer, lung cancer or lupus, conditions that are known to disproportionately affect diverse communities. We wanted to better understand how culture and identity affects the way caregivers provide care, access culturally responsive supports and resources, and how caregivers engage with patient advocacy groups. With the guidance of a panel of disease representative patient advocacy organizations, these findings shaped the content of this guide and supported the need for sections detailing the research findings, articulating what diverse caregivers say about their experiences, and offering tips for both advocating for and empowering diverse caregivers. What Providers Should Know: Factsheets About Diverse Family Caregivers, was contributed by the Diverse Elders Coalition and offers supporting evidence documenting the unique needs of diverse caregivers.
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Cultural Norms and Caregiving

Cultural norms and values can impact the way Hispanic/Latino caregivers care for their loved ones. This series of worksheets and accompanying videos was created in collaboration with our partners at Trualta. They are designed for caregivers to identify how cultural values and norms affect their caregiving, help identify which values are important to them, and ways to implement those values in their daily lives as caregivers. Each worksheet has an accompanying video which features interviews with actual caregivers sharing their experiences to help reflect on how different values affect caregiving, and guidance on how these values can also help self-care for caregivers.
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Tips for Hispanic/Latino Family Caregivers of Older Adults: Planning for Public Health Emergencies and Common Disasters

A Public Health Emergency is when a community is impacted by the threat of an illness or health condition that poses a substantial risk to human health, such as COVID-19, or natural disasters also known as common disasters. Examples of common disasters include wildfires, windstorms, floods, earthquakes, tornados, extreme temperatures, and hurricanes.
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Interview With Dr. Donna Benton On Supporting Black Caregivers and Older Adults

To celebrate Black History Month and National Caregivers Day (February 18th), National Center on Law and Elder Rights (NCLER) interviewed Dr. Donna Benton of the University of Southern California’s Leonard Davis School of Gerontology. In this brief video interview, Dr. Benton discusses her work supporting Black caregivers, the importance of caregiving in the Black community, and strategies for advocates who wish to better support their Black older adult clients. She also talks about the need for legal assistance in advance planning and addressing issues involving housing scams in the Black community.
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Search. Find. Help.

The purpose of Search. Find. Help. is to help organizational leaders and staff find resources they can use to support older adults and caregivers during public health emergencies. These resources include interventions, policies, programs, and strategies addressing social isolation, managing chronic conditions, elder abuse and neglect, caregiver support, delayed medical care, and emergency preparedness. Many of the resources included on this site are designed for public health emergencies; others have been adapted for or are applicable to outbreaks such as COVID-19 (for example, because they are available remotely). 
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Understanding Trauma and Ensuring Person-Centered Care During the COVID-19 Pandemic Training Series

In partnership with Dr. Sheri Gibson, the National Long-Term Care Ombudsman Resource Center (NORC) published this free four-part series for three audiences (family members of individuals living in long-term care facilities, facility administrators, and direct care staff). In the series, Dr. Gibson provides training on the following topics: person-centered care, trauma-informed care, compassion fatigue, and anxiety and grief in the time of COVID-19. Each topic will include one webinar recording and slides for each audience.
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