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On January 4, 2011, the National Alzheimer's Project Act (NAPA) (Public Law 111-375) was signed into law. The Act defines "Alzheimer's" as Alzheimer's disease and Alzheimer’s disease-related dementias (AD/ADRD) and requires the Secretary of the U.S. Department of Health and Human Services (HHS) to establish the National Alzheimer's Project to:
- Create and maintain an integrated National Plan to overcome Alzheimer's disease;
- Coordinate Alzheimer's disease research and services across all federal agencies;
- Accelerate the development of treatments that would prevent, halt, or reverse the course of Alzheimer's disease;
- Improve early diagnosis and coordination of care and treatment of Alzheimer's disease;
- Decrease disparities in Alzheimer's disease for racial and ethnic minority populations that are at higher risk for Alzheimer's disease; and,
- Coordinate with international bodies to fight Alzheimer's disease globally.
The law also establishes the Advisory Council on Alzheimer's Research, Care, and Services (Advisory Council) and requires the Secretary of HHS, in collaboration with the Advisory Council, to create and maintain a National Plan to overcome AD/ADRD.
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This report is the product of a series of activities conducted by the Diverse Elders Coalition and its members’ organizations, and in partnership with the National Alliance for Caregiving, to better understand and highlight the lived experiences of diverse family caregivers for older adults.
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There are 2.6 million children in the United States growing up in grandfamilies, meaning they are raised by relatives or family friends without their parents in the home. While grandfamilies are of all geographic locations, socio-economic levels, and races/ethnicities, Black, American Indian, and Alaska Native children are the most likely to be in grandfamilies. Grandfamilies arise out of events that separate children from their parents, such as death, including from COVID-19, substance use, incarceration, mental illness, divorce, or military deployment.
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It became evident early in the coronavirus pandemic that older age is a risk factor for becoming severely ill with COVID-19. But the virus’s impact on older adults goes beyond a higher risk for serious infection: it also includes limited access to care for all health conditions, as well as considerable social and economic hardships.
Drawing on findings from a survey of more than 18,000 adults age 65 and older in 11 high-income countries, we show how COVID-19 has affected the economic security of older adults as well as their access to health care and supportive services for chronic conditions. We also highlight the state of vaccination for older adults during the first quarter of 2021.
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Over the last 12 years, New York City has experienced multiple catastrophic events. The 2001 attack on the World Trade Center, the blackout of 2003, Hurricane Irene, and, most recently, Hurricane Sandy, posed significant challenges to older adults. A common denominator of these incidents was the loss of power and the disruption of systems and services upon which older adults rely, including but not limited to transportation, communication, health care, elevators, and social supports. As a result, tens of thousands of older adults were isolated in high-rise buildings and private homes, in need of food, water, warming or cooling, medical attention, and medication.
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