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The National Alliance for Caregiving conducted structured interviews with professionals from patient advocacy groups and diverse family caregivers caring for someone who had been diagnosed with heart disease, blood cancer, lung cancer or lupus, conditions that are known to disproportionately affect diverse communities. We wanted to better understand how culture and identity affects the way caregivers provide care, access culturally responsive supports and resources, and how caregivers engage with patient advocacy groups.
With the guidance of a panel of disease representative patient advocacy organizations, these findings shaped the content of this guide and supported the need for sections detailing the research findings, articulating what diverse caregivers say about their experiences, and offering tips for both advocating for and empowering diverse caregivers. What Providers Should Know: Factsheets About Diverse Family Caregivers, was contributed by the Diverse Elders Coalition and offers supporting evidence documenting the unique needs of diverse caregivers.
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The Naturalization Working Group plans to implement a national strategy to promote naturalization. Read the full report. USCIS is committed to empowering immigrants to pursue citizenship and the rights and opportunities available to them as they embark on their journey. The Administration for Community Living is sharing the following USCIS naturalization resources, which may be helpful for aging and disability organizations serving immigrant and refugee older adults and people with disabilities.
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CHW-led interventions that focus on chronic disease management are known to have positive health outcomes for individuals and communities. In particular, research has shown that CHWs can positively influence hypertension, heart disease, diabetes, cancer, and asthma. Individuals who participate in CHW-led programs have demonstrated improvements in A1C levels, increased their physical activity, improved their mental health, and have a better understanding of their conditions. CHWs are particularly effective at addressing chronic disease because they come from the communities they serve. This quality puts CHWs in the best position to provide health education that is culturally aligned and in the language of the people being served.
These resources go in-depth about the positive impacts that CHW-led interventions can have on individual patients, organizations, and communities. They draw from MHP Salud’s own experience implementing and improving CHW-led programs that address chronic disease and include information on other useful resources.
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Both inside and outside the foster care system, American Indian and Alaska Native children are more likely to live in grandfamilies—families in which grandparents, other adult family members or close family friends are raising children with no parents in the home—than any other racial or ethnic group.
Over the last few decades, drug epidemics, natural disasters and other tragedies have both created grandfamilies and challenged existing ones. The COVID-19 pandemic is the latest crisis to have elevated the needs of these families, and in particular the needs of American Indian and Alaska Native families, who are being disproportionally impacted by the pandemic. The rates of infection and death are staggering. For example, as of early May 2020 in the Navajo Nation, the mortality and infection rates are higher than the vast majority of states.
This toolkit is designed to give resources and tips to child welfare agencies, other government agencies and nonprofit organizations, so they can better serve all American Indian and Alaska Native grandfamilies regardless of child welfare involvement. It will explore some unique strengths and challenges of these grandfamilies, which agencies and organizations need to recognize in order to provide culturally appropriate supportive services.
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rican American children will live in grandfamilies is more than double that of the overall population, with one in five African American children living in grandfamilies at some point during their childhood.
agencies, other government agencies and nonprofit organizations, so they can better serve all African American grandfamilies. It will explore some of the unique strengths and challenges of these grandfamilies, which agencies and organizations need to recognize in order to provide culturally appropriate supportive services.
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This guide includes resources and tools that age- and dementia friendly community stakeholders can use to promote conversations and take action to reduce inequities. Being more inclusive can broaden the impact of local Age- and Dementia Friendly initiatives, strengthen communities, and improve access to services and opportunities.
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The purpose of Search. Find. Help. is to help organizational leaders and staff find resources they can use to support older adults and caregivers during public health emergencies. These resources include interventions, policies, programs, and strategies addressing social isolation, managing chronic conditions, elder abuse and neglect, caregiver support, delayed medical care, and emergency preparedness. Many of the resources included on this site are designed for public health emergencies; others have been adapted for or are applicable to outbreaks such as COVID-19 (for example, because they are available remotely).
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Older adults and people with disabilities often have unique needs in emergency situations. They and their families and caregivers should take steps to prepare for emergencies.With advance planning, it is possible to accommodate issues such as mobility limitations and the need for battery or electrically powered medical devices or durable medical equipment. Without it, these limitations could negatively impact a person during a crisis.
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The National Alzheimer’s and Dementia Resource Center (NADRC): Funded by the Administration on Aging/Administration for Community Living (AoA/ACL), the NADRC provides expert technical assistance to AoA/ACL and it grantees on dementia-capable systems, supportive services for people with dementia and their caregivers, evidence-based caregiver interventions, behavioral interventions for people with dementia, data collection and reporting, and program evaluation.
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